Hello, I am Colm's older brother.
At first when I heard we were having a baby in our family, I was very excited about it. But when my mom had to have an amnio, we had some good news and some bad news. The good news was that I was going to have a brother, but the bad news was that he was going to have some heart defects. I felt good that I would have a baby brother, but sad that he would have heart defects.
The one day at dinner my mom
and dad called me to the table and told me that my brother
probably wouldn't live long because he had Trisomy 18.
I was very sad that he wasn't going to live long, but
happy that he was going to see our grandma in Heaven.
When Colm was born, he looked
a little odd. I told my mom his head looked like a potato.
But his feet and his hands were perfect-- tiny, but
perfect. My mom and dad say Colm's hands look just like
mine when I was born. I love Colm, and I just wanted
to let you know how I felt about it all.
Excerpt from the eulogy given
at Colm's funeral by his 9 year old brother in 2004.
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The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.