You are not alone in carring your child with D-2 Hydroxyglutaric Aciduria (D2HGA):


D-2 Hydroxyglutaric Aciduria (D2HGA):
Stephanie & Jack's Story

If you have a D-2 Hydroxyglutaric Aciduria (D2HGA) story to share, please submit it to us by contacting

The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.


Congenital Diaphragmatic Hernia (CDH) Links:

Real Hope for CDH

Stories from the Fetal Care Center of Cincinnati