Theo with Mom & Dad
son Theo was born on January 15, 2006. His trisomy 13
was not picked up by prenatal ultrasound, so it was
a shock to discover about an hour after his birth that
he had such a severe condition. He lived for five hours,
surrounded by loving family, then very peacefully died
in my arms. The beauty he brought in his short life
is indescribable, and while we are heartbroken that
he left so soon, we feel extremely grateful that he
came along at all, and honored that he chose us to be
I was 35 when I got pregnant
and knew that extensive prenatal testing was recommended
for my age group. Luckily, we decided against it and
never had to face what must be a very difficult decision
for parents who find out negative results early on.
I don't know what I would have done, I certainly didn't
have any idea what enormous blessings could lie in such
a "tragedy," nor was I aware of the courage
I now know I have. I am just extremely thankful that
Theo made it to birth against the odds and touched us
so deeply. He brought so much love, it will burn in
my heart for the rest of my life.
Such a mysterious journey,
this loss, this gain, has been. As a priest friend of
the family wrote to me, "God works wonders without
to Trisomy 13
You can read more about
Trisomy 13 and receive incredible on-line support through
the private message board on www.livingwithtrisomy13.org.
-The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.