is Natalie and I wanted to share my son Brandon's story
to give others hope.
When I was pregnant with Brandon I was 19 years old.
Throughout my pregnancy everything seemed fine up until
the 6th month. The doctor would always ask if everything
was ok and check the heart beat and ask if I felt a
lot of movement. I told the doctor I felt fine and I
did not really feel Brandon move much. So they did an
ultrasound. They said he was a little small and decided
to do a stress test to see if he was under stress. They
said the test was abnormal and could
not figure out why so they continued to monitor me through
out the pregnancy.
The day that was supposed to be a happy day had become
a very sad day. While laying in the hospital bed( in
labor) Brandon's dad and the doctor were in the room
with me. The doctor had told me to lay there and rest
and they would be back to check on me. The doctor dimmed
the lights and walked out. Brandon's dad laid on a chair
next to my bed while waiting he fell asleep. I laid
there and closed my eyes and suddenly I felt someone
holding my hand. I figured it was Brandon's dad
so I still laid with my eyes closed and then it dawned
on me that the person holding my hand had rough hands
and Brandon's dad had very smooth hands. I immediately
opened my eyes and there was no one there and Brandon's
dads back was to me and he was asleep. To this day I
know it was god holding my hand trying to tell
me everything will be ok.
Finally Brandon was born. He had a cleft lip and palate
and the doctors had to take him right away for testing.
They came back the next day and told us that Brandon
had T-18 chromosome disorder and would not live long.
One of the questions they asked us was being Brandon's
situation and the way he looks would either of you be
uncomfortable ( or embarrassed ) bringing him out
in public? I said absolutely not and his father answered
yes I would be embarrassed. Very shortly after that
Brandon's father left me to care for him on my own and
has not been around since. A few days later a team of
doctors and social workers scheduled a meeting with
me. When I attended they tried to get me to give Brandon
to foster care. I said no way my son
is staying with me. One of the social workers laughed
at me and said and what do you intend to do with him?
I walked out in tears. All I have to say is I wish they
could see us now.
Since then Brandon has had to have many reconstructive
surgerys on his ears because the canals were to small.His
cleft lip and palate has been repaired and he has also
had surgery on his ankle because the tenant was so
stiff and needed help relaxing so he could try and walk.Brandon
also had to take growth hormone shots for 4 years (
that I had to give him everyday ) because he was
so small.He also has hypothyroidism but is on the lowest
dose of medicine you can take for it. He also
wears hearing aids to help him hear. The doctors
told me he was not going to crawl, walk or talk. Today
Brandon is 16 years old and is in High School. He crawled,he
walked and he also talks. My son is the strongest
person I know. He has been through so much but he is
still here and he is doing well. DO NOT listen to what
the doctors say. There is hope. My son is living proof.
If anyone would like to see or meet Brandon I am open
to that anytime. If anyone has any q uestion please
contact me anytime at email@example.com.
God bless you all.
to Trisomy 18 Stories
-The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.